We had Tantrum Tot screened for services this week. Due to the diagnosis he received a few months ago, we went ahead and called a program where we live which says they can help provide services for him based on that the diagnosis we received. 

Because to be honest, the Tot has been RAPIDLY spiraling out of control at home. Well we go in there, with the Tot and Aspie Baby in tow… we get in to see the counselor and the eval goes into full swing. Well guess what? Several things…first

a). She agreed with us that the Oppossitional Defiance Disorder diagnosis they gave us was a bunch of crap.  We just really read through the DSM V criteria for ODD…and HOW they thought this applied to Tantrum Tot is still beyond me. 

Anyway, long story short after observing the Tot in action, and listening to us share about him, the lady (who happened to be the program director as well) told us that according to the file he’s failed the preliminary screening test (MCHAT) four times already so she doesn’t know why he hasn’t been diagnosed already.

She said she had to score the tests etc. and she would be in touch. The next evening she called and said that Tot had been unofficially approved to receive services!!! It’s not finalized yet but he meets the criteria for autism support services!!!

So two emotions rush in right away. 1. RELIEF!!! Finally Tot is going to get some much needed support. With this program he will be able to start” school” at three in special Autism classes.

2. HOPE!!! Aspie Teen is 14 and the lack of diagnosis and intervention is becoming me and more obvious everyday…so Tot will receive help he needs early on…

I don’t care what anyone else tells you…you are the parent and you see in your time with your child what they will never see in their few hours of controlled interaction. Don’t let them discourage you…don’t take no for an answer. Keep trying.

Some wonderful people on this blog reminded me of that when Tot was first diagnosed. And now I want to say it to anyone else who needs to hear it. Keep at it!!! Fight for your children against a child uncaring system and providers who look at the patient as a means to a paycheck…no-one knows your child better than you.

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