Archive for May, 2014


After a miserable day yesterday that left his mother in tears by the end of it,  the Tot seemed determined make up for it today,  because he’s been so well behaved that I’m wondering what they put in his sippy cup at school today and where can I get a hold of some of that stuff myself!

He’s been happy,  he’s asked for help,  he’s listened,  he took a bath AND he went potty all by himself with no prompting for the very first time today!!!

He’s been walking around without a pamper/pull up all evening,  (which made me very nervous I’m not ashamed to say), and then he just gets up and walks to the bathroom,  climbs up on the porcelain throne,  and lets go!

Some of you may be like what’s the big deal,  but some of you know what a VERY big deal it is when your special needs kid does something like this because you never thought you’d see the day come when they did it!

Most nights, he climbs into my bed and holds my wife hostage for 4-6 hours before he passes out. Tonight, he let me bring him to bed and lay down next to me and passed out in 45 minutes.

I don’t know what the change is but I pray to God to please let it last at least a few days!

 

Tot at the playground-he looked so happy I thought it would be the perfect pic to go with this post.

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Today the wife and I went to Monkey Boys school,  to have not one but two IEP meetings,  one for Monkey Boy and one for the Tot.

Well come to find out that both of them are doing very well,  and their teachers are delighted with them,  they’re progress and their behavior. .. to which we had to ask, even the Tot?

Turns out the Tot is a well behaved ANGEL at school!!!!! I actually had to play them videos on my phone of episodes he’s had at home.  They couldn’t believe it!  So now they are going to focus more in the behavioral area when he goes back to school next year.  Until then though, the wife and I need to survive the summer! (More her than me,  and she’s already at the end of her rope I’m afraid). 

The school offers an Extended School Year program,  but it’s only for 2 weeks/10 days.   So I’m afraid the Tot may have to go back to day care for the summer for the sake of our sanity. Luckily the Tot really liked his last day care which is where he would be going back to. 

He does better with the structure and routine that the daycare provides anyway.  Staying at home while the baby is around,  Aspie Teen is doing school work and Monkey Boy is running around like a maniac only destabilizes his routines and his mother is still in school,  is home schooling the Teen  and trying to keep up her writing,  blogging etc while I’m at work is exhausting for her.  So the daycare will be a good solution all around.

Of course when the Tot got home from school today he had such a bad day that his mother was in tears by the time she went to bed and I wasn’t in much better shape myself.  Monkey Boy had a meltdown too.  So good start to the day,  but a horrible ending.  The story of my life.

Had to Share This!

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At 11:37 p.m. I glanced at the clock…I jumped up and said…oh no! We didn’t go get more wine!!! (In our ridiculous little town you can’t buy alcohol on Sunday’s). If I can make it to Wal-Mart before 12:00 I can get some! My wife who was sitting on the sofa reading schoolwork on her laptop said what any supportive wife would say…GO HONEY GO!!!!

The weekends are becoming more and more difficult for us with the Tot’s behavior becoming increasingly worse. (We are trying to raise funds to get him a service dog). So we’ve been using wine as way to keep us mellow (believe me there’s not enough wine in the world), or at least to take the edge off.

When I came back from the store with 2 bottles of wine and a pack of Seagram’s Escapes, and we both sighed…we knew we had issues! LOL

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Today was a long day for all of us starting with a 10:30 a.m. baseball game for Monkey Boy, then going to stores with Monkey Boy, Tantrum Tot and the Chunky Monkey in tow….woo hoo…THAT was FUN…

Anyway we go home after the stores and continue our floor project. We have the foyer, living room and dining room done (except for the trim and baseboards, and half the kitchen. Well today was the first day for the pool in our subdivision to open and Mr. I’m a fish Monkey Boy has been pestering us for the past 2 weeks to go when it opens. We let Aspie Teen take Monkey Boy to the pool, as he’s had a LOT of practice in that area from all the trips we’ve taken to hotels with pools, and lazy rivers…Aspie Teen does a really good job and Monkey Boy is a VERY strong swimmer. Also the pool  is literally a straight shot to our house and if you sprint it’s less than a minute away.

Well apparently Aspie Teen’s friends two brothers came by and went to the pool with them. A few hours later Monkey Boy and the Teen come in no problem, go change and life goes on…

Well when Monkey Boy was trying to fall asleep, he said “What’s the use I’m probably just going to have nightmares anyway.” Now I know Monkey Boy has had Night Terrors before so I ask him how long has he been having nightmares, and he was very evasive. My wife comes in from dropping the Monster In Law off at her house and he told us that Aspie’s Teen friend’s brother who was at the pool with them almost drowned in the deep end and Monkey Boy jumped in and SAVED HIM!!!!

Monkey Boy saved a human life…no thought, no doubts…saw the situation at hand jumped in and handled it!!! Words cannot describe how AMAZED AND PROUD OF THIS KID I AM!! And just when you thought you couldn’t feel any better about your kid, he goes on to say that he just keeps worrying about what would have happened if he wasn’t there…that the boy could’ve drowned…he’s feeling bad because he couldn’t stop it from happening so the other boy wouldn’t have had to experience what he did and probably have nightmares himself.

I have the MOST AMAZING ten year old in the world!!! Not only did he SAVE A LIFE at ten years old, but he gave me a perfectly good reason to do a cyber flip-off to all the idiots in the world who insist on thinking that people/kids on the spectrum are LESS or that they cannot do as well as NT’s in any given area…well guess what? My kid saved a life without hesitation or discussion…what did yours do? NAH NAH NAH NAH NAH NAH NAH!!! (I’m sorry, that was a little immature wasn’t it?)

Three cheers for Monkey Boy! The greatest 10 year old on the planet!

Monkey Boy plays baseball now.  He’s on a team sponsored by a local church.  He loves being active and social.  This is NOT the kid I’m worried about having social hang ups… (at least not yet anyway).

I usually take him and the Tot,  and sometimes Chunky Monkey to his practices during the week in order to give their mom a much needed break from the insanity which governs her life.

Well his games are every Saturday,  usually at 9 a.m. ( sadistic bastards making us get up that early on a Saturday) and like everything else in our lives,  these games create their fair share of chaos.

The stress of getting ready for these events,  and getting the clan out the door is usually enough to create strong desires for vats of wine in my wife and incredibly strong urges to break things in me accompanied by the overwhelming urge to eat (I comfort eat,  sue me).

When we actually get to the game,  I usually don’t see much of it due to the need to take the Tot for walks or over to the playground to keep him calm and happy.

Today after going through hell to get everyone out of the house,  (which apparently is my fault for taking too much time for myself this morning before walking everyone up to get ready), we got to the game and the Tot was doing so well!!! He was happy, and he was even standing at the fence next to the dug out and cheering for his brother! The Chunky Monkey was loving being outside in the sun and was sitting straight up in his stroller taking in all the sights…

 

Chunky Monkey at the game

Chunky Monkey at the game

 

Chunky Monkey was passed out when I got back from the playground!

Chunky Monkey was passed out when I got back from the playground!

Well one of the mother’s in the stands behind him had a REALLY penetrating sort of voice and every time she rooted for one of the kids, both my wife and the Tot physically jumped. After a few times of this happening, the Tot started flapping his hands and leaning from side to side. My wife spotted the signs in time and I was  able to take him to the playground before the meltdown started. The poor kid was doing so good too…I’m starting to wonder if he might have SPD and we haven’t caught it yet…

 

 

 

 

 

 

 

 

 

And poor Monkey Boy, struck out every time he was at bat today which is really weird cause usually he hits like a rock star…but by the end of the game, after having struck out and their team lost the game, he was in a bad mood which means he had to be separated from Tantrum Tot for a while till he worked his way through it, since he came off the field like “Great! Now my dreams are ruined!” Cause he was hoping that his team went undefeated through the season…he looked like a little storm cloud stalking off the field!

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Just a typical day for the Aspie Family!20140517_091752-1

 

No Imaginative Play My Ass!

It always amuses and frustrates me when I think about the fact that doctors make such a big deal about the whole,  “kids with autism don’t do imaginary play thing”.

Really? You don’t say?  In her book,  my wife goes into how she had imaginary friends and imaginary puppies that went with her wherever she went,  no matter what it was she was doing.  Isn’t that the highest form of imaginary play?
Tantrum Tot, used to line up his cars all day long. Not so much anymore,  but still.  And each car has a specific purpose in his mental script . Trying to make one of those cars do or say something other than what is in his head that they say is a one way ticket to meltdown-ville. And while that still is true today  (although honestly not so much anymore), he still does the whole imaginary play thing. 

A perfect example is today he imagined his toy puppy was real.  He had to have real food for him,  (which was Fruit Loops). And then he went to his mom asking her to help him with his puppy.  Apparently,  he was forcing the Fruit Loops in this toys head!

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The Toy

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ALL these Fruit Loops were in the dogs head! !!

Happy Mothers Day

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I couldn’t resist posting this. 

MB turned 10 today!  I made him toast with jelly for breakfast,  and I told him Happy Birthday bud,  and he goes Double digits baby,  I’m a man!  To which I replied,  Great! Now go get a job!  To which he replied,  A job? ! Ppph! Yeah like that’s going to happen! !!!
LMAO!

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Happy birthday kiddo!

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