It it’s with greatest sorrow that I have to say good bye to my mother who passed away this morning.
She had been sick, suffering from dementia , Alzheimer’s and refusing to eat. She was on a feeding tube and her body just couldn’t take anymore.
She raised 7 kids, oft time by herself, on little to no money at all. She was loved and respected by everyone who knew her, she was a woman of deep conviction and intensely strong faith, who did her best to “raise her children up in the way they should go”.
Every Christmas she’d make her famous puding de pan, which is bread pudding, she’s make 7 trays and give 6 of them away to people in the church even though she knew I could eat 4 trays all by myself.
She leaves behind 4 daughters, 1 remaining son, (me) and around 11 grandkids, (there may be 1 or 2 more I’m not sure) and a host of people who will remember her for all the love she demonstrated to them.
My mother at my house
My mother holding Chunky
Well Cheri from SDWR is back to help with more training for Rocky. Due to his being sick, we lost a lot of good training because we had to keep him isolated from the side of the house where we spend much of our day, cause he would “go potty” without notice.
We’ve had some ups and downs with him… And of course the second Cheri stepped in the house, He straightened back up and got right back in line, once again making liars out of us!
Ever notice how the kids do that too? Keep them home from school due to fever or vomiting etc. and when they get to the doctors office they’re feeling fine and break dancing making a liar out of you? Well apparently even the dogs are in on the action.
We sent the Tot to school even though he’s supposed to be here for training, but since we’re working on basic obedience training, we figured the 3 hours he’ll be present from when he gets back and when Cheri leaves will be sufficient.
Here are some pics from yesterday’s training. Enjoy.
Wifey & Rocky leaving how to walk
Cheri & Wifey & Rocky
The Tot & Rocky
Wifey & The Tot
Saturday we took the kids to a festival the next town over. Monkey Boy wanted to race in a go kart race they held. So we bought him a go cart we found on craigslist and entered him in. I spray painted it black and painted Batman symbols all over it. He loved it. We were finishing it up the night before the festival and him and I got to hang out in the basement painting it and watching Let It Shine on Netflix. It was a good night.
MB and has Batmobile
Then the next morning him and I took the cart in the Jeep and went out there at 8:30 in the morning for practice runs…man was it FREAKING COLD!!!! I can’t believe how cold it was in the end of April!!! And of course I had left my hat and gloves in my desk drawer at work!
Well the rest of this tribe met us there at 11:00 a.m. despite the Monster In Laws usual idiocy prior to leaving and Aspie Teen’s passive resistance ridiculousness that he pulls every time we make him leave the house and the fact that I had to run back home and drop off my wife’s van keys which were in my coat pocket from the night before. (Yeah THAT went over well).
Well the day was going well unit the To had a (I shit you not) hour long meltdown, because he couldn’t race the cart down the hill in the race. So he sat in the cart and Monkey Boy couldn’t race in HIS cart and he couldn’t use HIS helmet (everything is his don’t ya know?).
The Tot making his stand
He didn’t calm down until I let him go down the hill in the cart on the other side of the track, wearing the helmet of course…then he was happy tot again…..I could’ve killed him!
Me carrying the Tot back UP the hill
Monkey Boy even entered a pie eating contest! He’s never even eating pie as far as I can tell! And he got his pic in the paper looking too cool too!
Eating pie with perfect hair!
I don’t know what the locals thought of our autistic family…but the kids had fun and that was the whole point of it anyway.
Today my wife, the Monster in Law, Chunky, Tantrum Tot and I ventured off to a thrift store the next town over. Now it goes without saying that by the time we got in the van to go I needed a drink (or 30).
Here are some pics from the venture.
They had this sign there, I thought it was awesome
The Tot wouldn't take his helmet off the whole time
The Tot & Chunky playing with their new toys
From these pics it looks like the day went all nice and calm and the little monsters were actually cherubs wouldn’t you?
The pics don’t show the amount of times I had to count to 10 or walk away or chase after chunky cause he bolted, or how loud he screamed, or how many times I had to avert a meltdown by the Tot.
They don’t show the frustration, or the anger, the being fed up, the overwhelming urge to smash things simply because there is nothing you can do.
Everyone’s journey with autism, everyone’s experiences, everyone’s ability to cope is as different as how many different presentations there are of autism itself.
Remember that everyone deserves the benefit of a doubt and everyone deserves understanding as well as compassion. Be they autistic or Neuro typical. And no-one deserves to be judged.
Enjoying the sun finally!
Chunky is now 19 months old and is completely non – verbal. He is happy most of the time though. AND he actually communicates with us! He will bring us to the table and grunt and squeals till we guess what he wants.
When he is happy he will squeal and laugh with such cuteness! He gets very “flappy” when he’s happy, and will walk around flapping his hands like crazy. Or he’ll run around in circles and make himself fall over, or go running across the floor on his tip toes. And he’s got the cutest giggle ever.
Of course the flip side of that is that he has the most eat piercing yells too. But for the most part, he’s a happy Chunky.
He’s never had a haircut and his hair is completely out of control. I can barely get him to eat anything most days and he hates bring “tied” in his high chair. He’s starting to play with his brother’s toys and Netflix keeps him occupied for hours. He walks around with a baby blanket all day and won’t go to sleep without it. He reminds me of Linus from the Peanuts gang.
I’m rapidly losing hope that he won’t be on the spectrum though. In fact his mom and I are trying to get the process started to test him. I guess I’ll continue to be the only N.T in this house!
Aspie Teen turned the big 16 today!
Right this second he’s in DMV taking the exam for his drivers permit!!!
Lord I don’t know if I’m strong enough for this!
But do me a favor and leave him a comment here wishing him a happy birthday!